DCCSS-LATER study part 1
Nationwide cohortstudy questionnaires & linkages studies
In the Netherlands, we have identified more than 12,000 5-year survivors treated for childhood cancer between 1963 and 2014. 6,165 survivors participated in the multidisciplinary DCCSS-LATER study part 1, which included data about childhood cancer diagnosis and treatment, health, lifestyle, and psychosocial functioning from questionnaires, and data on health outcomes from linkage to health registries. https://pubmed.ncbi.nlm.nih.gov/36519590/
Study | Title | PI’s and researchers |
LATER A-data registration | LATER A-dataregistratie | M. van der Heiden |
Overall coordination DCCSS LATER 1 infrastructure | DCCSS LATER 1 infrastructure: Infrastructure for the nationwide DCCSS LATER 1 study: questionnaires and linkages on late effects among Dutch childhood cancer survivors (KWF) | L. Kremer*, H. Caron, E. van Dulmen-den Broeder, A. Postma |
DCCSS LATER 1 substudies | ||
Mortality | DCCSS LATER 1 substudy: Late mortality in childhood cancer survivors according to pediatric cancer diagnosis and treatment era (EU: PCSF) | C. Ronckers*, L. Kremer PhD: E. Kilsdonk |
Burden of Disease | DCCSS LATER 1 substudy: Long-term morbidity and healthcare consumption in childhood cancer surivors: national linkage study (Burden of Disease) (KWF) | L. Kremer*, W. Tissing, J. Korevaar (NIVEL) PhD: N. Streefkerk |
Dosimetry RT | DCCSS LATER 1 substudy: cohort-based radiation dosimetry for long-term survivorship research (EU: PCSF & AMC) | C. Ronckers*, W. Dolsma, L. Kremer, J. Kok |
Social outcome | DCCSS LATER 1 substudy: Social outcomes in childhood cancer survivors | M. Grootenhuis*, H. van der Pal, J. Loonen, E. van Dulmen-den Broeder, A. de Vries, L. Kremer |
Life style | DCCSS LATER 1 substudy: Life style in childhood cancer survivors (EU: PCFU) | S. Pluijm*, J. Loonen* PhD: E. Bouwman |
FATI | DCCSS LATER 1 substudy: Prevalence and risk factors of cancer related fatigue in childhood cancer survivors | J. Loonen*, H. Knoop PhD: S. van Deuren |
FRTM | DCCSS LATER 1 substudy: Reproductive potential in male survivors of childhood cancer | J. Loonen*, C. Beerendonk, E. van Dulmen-Den Broeder PhD: J. Claessens |
QoL SF36 NL | DCCSS LATER 1 substudy: Treatment-related Quality of Life in Dutch long-term survivors of childhood cancer (EU: PCL) | M. Grootenhuis*, E. Van Dulmen-den Broeder, L. Kremer, H. Maurice-Stam PhD Student: L. van Erp. |
Upper-body radiotherapy | DCCSS LATER 1 substudy: Long-term side effects of upper-body radiotherapy: Evaluation of risk factors and detailed assessment of clinical characteristics to inform pediatric radiotherapy and survivorship care (KiKa) | C. Ronckers*, L. Kremer, G. Janssens, PhD: L. Verbruggen |
Colon | DCCSS LATER 1 study: Colorectal adenoma and cancer after treatment for pediatric cancer – risk, risk factors, and surveillance guidelines (KWF) | L. Kremer*, J. Teepen, C. Ronkers PhD: A. Westerveld |
Tinnitus and hearing aid | DCCSS LATER 1 study: Tinnitus and hearing aid in childhood cancer survivors (Group van den Heuvel) | M. Van den Heuvel*, L. Kremer, W. Tissing PhD: A. Meijer |
Course of cardiotoxicity | DCCSS LATER 1 study: Clinical course of acute and late cardiac dysfunction after childhood cancer treatment: a DCOG-LATER study | L. Kremer*, E. Feijen, W. Tissing, W. Kok |
Pain | LATER clinical studies: Pain in childhood cancer survivors; a DCOG LATER study | J. Loonen*, M. Grootenhuis, |
SMN | DCCSS LATER 1 study extension: risk and time trends of subsequent tumors after five decades of pediatric cancer treatment (Máxima grant) | J. Teepen, L. Kremer*, C. Ronckers PhD: A. Westerveld |
SMN, cardiac and lifestyle | Lifestyle risk factors comorbidities and physical activity and subsequent malignant neoplasms and cardiac outcomes | J. Teepen, L. Feijen, S Pluijm, L. Kremer |