DCCSS-LATER study part 2
Nationwide cohortstudy outpatient clinic visit & questionnaire studies
~2400 survivors (also) participated in the DCCSS-LATER study part 2 and visited the LATER outpatient clinic for additional medical data and blood sample collection. https://pubmed.ncbi.nlm.nih.gov/36651687/
| Study | Title | PI’s and researchers |
| Overall coordination DCCSS LATER 2 infrastructure | DCCSS LATER 2 infrastructure: The nationwide LATER Study: medical assessment of adverse health outcomes in Dutch childhood cancer survivors: outpatient clinic & questionnaires (KiKa ODAS) | L. Kremer*, E. Van Dulmen-den Broeder, W. Tissing, J. Loonen, A. de Vries |
| DCCSS LATER 2 infrastructure genetics | DCCSS LATER 2 infrastructure: Genetic determinants of late toxicities among childhood cancer survivors (Kika row and other projects) | L. Kremer, W. Tissing, E. van Dulmen-den Broeder, J. Loonen, M. van den Heuvel-Eibrink |
| DCCSS LATER 2 substudies | ||
| SMN | DCCSS LATER 2 substudy: Second primary malignancies after childhood cancer, focus on breast cancer | C. Ronckers*, F. van Leeuwen, H. van der Pal |
| THYR | DCCSS LATER 2 substudy: Thyroid function, in children and adults, after treatment for childhood cancer | C. Ronckers*, H. van Santen, H. van der Pal |
| EGHA | DCCSS LATER 2 substudy: Adult growth hormone deficiency in childhood cancer survivors (ErasmusMC) | S. Neggers*, M. van den Heuvel-Eibrink, W. Tissing |
| METS | DCCSS LATER 2 substudy: Metabolic syndrome parameters in adult survivors of childhood cancer | S. Neggers*, M. van den Heuvel-Eibrink, W. Tissing PhD: V. Pluimakers |
| FRTM | DCCSS LATER 2 substudy: Impaired spermatogenesis and testosterone deficiency in male survivors of childhood cancer (KWF) | J. Loonen*, C. Beerendonk, E. van Dulmen-den Broeder PhD: J. Claessens |
| BONE | DCCSS LATER 2 substudy: Bone mineral density and body composition in survivors of childhood cancer (KiKa) | M. van den Heuvel-Eibrink, S. Neggers PhD: J. Atteveld |
| SEXP | DCCSS LATER 2 substudy: Sexuality and psychosexual development in childhood cancer survivors | E. van Dulmen-den Broeder*, M. Grootenhuis, J. Laven PhD: C. Priboi |
| CARD | DCCSS LATER 2 substudy: Late cardiovascular toxicity in long-term childhood cancer survivors (Hartstichting) | L. Kremer*, E. Feijen, A. Mavinkurve-Groothuis, W. Kok, L. Kapusta, J. Loonen PhD: E. de Baat, J. Leerink, R. Merkx |
| RENA | DCCSS LATER 2 substudy: Long-term renal effects in Dutch survivors of childhood cancer (KWF) | M. Veening*, E. van Dulmen-den Broeder, A. Bokenkamp, H. van der Pal PhD: E. Kooijmans |
| PULM | DCCSS LATER 2 substudy: Is pulmonary dysfunction a late effect of cyclophosphamide treatment? (ODAS) | A. Versluys*, D. Bresters, L. Kremer, C. Ronckers L. Feijen PhD: R. van Kalsbeek |
| FATI | DCCSS LATER 2 substudy: Cancer related fatigue in childhood cancer survivors (KWF) | J. Loonen*, H. Knoop, PhD: S. van Deuren, A. Penson |
| PSYS | DCCSS LATER 2 substudy: Long-term psychosocial consequences of childhood cancer (KiKa) | M. Grootenhuis*, L. Kremer, H. Maurice-Stam en M. van Gorp PhD students: A. Maas en M. Joosten. |
| SPLE | DCCSS LATER 2 substudy: Prevention of Overwhelming Infection in Hyposplenic or Asplenic Cancer Survivors (CS); Obtaining Evidence to adjust the Guidelines (Radboudumc) | J. Loonen*, I. Walraven PhD: B. Houtman |
| SALI | DCCSS LATER 2 substudy: Hyposalivation in long-term survivors of pediatric cancers following different treatment regimens (KiKa) | D. Bresters*, J. Loonen, J. Raber-Durlacher, H. Brand PhD: J.Stolze |
| SKIN | DCCSS LATER 2 substudy: Late, benign sequelae of childhood cancer treatment on the skin | J. Loonen*, J. Teepen, L. Kremer |
| Lifestyle and aging | DCCSS LATER 2 substudy: Lifestyle and aging (Maxima) | S. Pluijm |